Comments on: Sign XMRV Petition Today! http://healthmattershow.com/sign-xmrv-petition-today/ Fibro blog Chronic Fatigue Syndrome blog How to heal Fibro and CFS Thu, 09 Feb 2012 02:45:17 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Cinda Crawford http://healthmattershow.com/sign-xmrv-petition-today/comment-page-1/#comment-1198 Cinda Crawford Tue, 06 Jul 2010 17:15:10 +0000 http://healthmattershow.com/?p=17627#comment-1198 Hello Suzie, Thanks for your thoughtful post and valid question. I assume (<em>dangerous word</em>) that any petition can collect names and be sent to the parties of action. (There are lots of petitions that get sent to congress, etc., with many goals.) Whether "they" pay attention or not is anyone's guess. I think most of the time many government and health officials ignore everything concerning these illnesses. Only public outcry, notariety, and action have a chance at propelling the issues forward. My aim is that if I can do anything reasonable to help, I will do it. I've been at the "business" of being sick and now being well for over 20 years and I know 2 things: 1) I don't get too upset at any one occurrence. It too shall pass. and 2) I have to take action when I can. If not "me", who do I have to blame for inaction? And as for the people on the Internet making money off the illnesses, I guess you can attribute that to 2 things, too. 1) The illnesses have gained a significant number of patients and notariety to garner more attention. Snake charmers or not, look at what the drug industry is doing! YIKES!! and 2) There are legitimate people trying to help people get well. I know because I am one of them. I can't speak for anyone else. Keep in touch and please come back, Cinda Hello Suzie, Thanks for your thoughtful post and valid question. I assume (dangerous word) that any petition can collect names and be sent to the parties of action. (There are lots of petitions that get sent to congress, etc., with many goals.) Whether “they” pay attention or not is anyone’s guess. I think most of the time many government and health officials ignore everything concerning these illnesses. Only public outcry, notariety, and action have a chance at propelling the issues forward. My aim is that if I can do anything reasonable to help, I will do it. I’ve been at the “business” of being sick and now being well for over 20 years and I know 2 things: 1) I don’t get too upset at any one occurrence. It too shall pass. and 2) I have to take action when I can. If not “me”, who do I have to blame for inaction? And as for the people on the Internet making money off the illnesses, I guess you can attribute that to 2 things, too. 1) The illnesses have gained a significant number of patients and notariety to garner more attention. Snake charmers or not, look at what the drug industry is doing! YIKES!! and 2) There are legitimate people trying to help people get well. I know because I am one of them. I can’t speak for anyone else. Keep in touch and please come back, Cinda

]]> By: Suzie http://healthmattershow.com/sign-xmrv-petition-today/comment-page-1/#comment-1183 Suzie Mon, 05 Jul 2010 16:30:22 +0000 http://healthmattershow.com/?p=17627#comment-1183 As a patient, citizen of the US, and advocate, and trained adjunct medical provider, is this petition valid when offered over the internet? We need powerful voices, and those who are willing and capable of getting before, in-front, next to, and all ways with the powers that be. How can this be done? There are many who want our voices squealched! There are many providers who are almost like, 'snake charmers,' trying to make money off conditions/diseases they know very little about. There are those who care and want to help, but the resources are limited. We have a major break-down in the healthcare 'industry,' which includes insurance, medically qualified practitioners, and those individuals, as stated, who do not believe those of us suffering, and/or do not belong caring for people who are in these perils. We need attention, direction and action. Sincerely, Suzie As a patient, citizen of the US, and advocate, and trained adjunct medical provider, is this petition valid when offered over the internet?

We need powerful voices, and those who are willing and capable of getting before, in-front, next to, and all ways with the powers that be. How can this be done? There are many who want our voices squealched! There are many providers who are almost like, ‘snake charmers,’ trying to make money off conditions/diseases they know very little about. There are those who care and want to help, but the resources are limited. We have a major break-down in the healthcare ‘industry,’ which includes insurance, medically qualified practitioners, and those individuals, as stated, who do not believe those of us suffering, and/or do not belong caring for people who are in these perils.

We need attention, direction and action.

Sincerely,

Suzie

]]> By: Tweets that mention Sign XMRV Petition Today! | The Health Matters Show With Cinda Crawford -- Topsy.com http://healthmattershow.com/sign-xmrv-petition-today/comment-page-1/#comment-1170 Tweets that mention Sign XMRV Petition Today! | The Health Matters Show With Cinda Crawford -- Topsy.com Sun, 04 Jul 2010 13:30:17 +0000 http://healthmattershow.com/?p=17627#comment-1170 [...] This post was mentioned on Twitter by Cinda Crawford, Cinda Crawford. Cinda Crawford said: Health Matters Show Sign XMRV Petition Today!: Please sign the XMRV petition to allow the NIH and FDA papers to be... http://bit.ly/dcBySS [...] [...] This post was mentioned on Twitter by Cinda Crawford, Cinda Crawford. Cinda Crawford said: Health Matters Show Sign XMRV Petition Today!: Please sign the XMRV petition to allow the NIH and FDA papers to be… http://bit.ly/dcBySS [...]

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