Please sign the XMRV Petition Today to allow the NIH and FDA paper(s) to be published asap! New and decisive action is needed and just maybe… a petition like this will catch hold if we all do our part, sign it and give this issue some legs.
Tell the DHHS to allow the NIH and FDA to publish their papers without undue procedures and hurdles. Preventing these papers from being published diminishes the trust of CFS Patient groups in the CDC and its willingness to deal honestly with this disease. To allow CFS patients and those with Prostate Cancer the best hope of fighting their illness, we must have the best scientific information that our government is capable of producing. Allow the findings to be released with all speed and tell the DHHS to stop playing politics with science.
Thanks, Cinda Crawford, host of the Health Matters Show
*This XMRV petition can be important is people like you and me believe that our voices make a difference.
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Suzie 07.05.10 at 12:30 pm
As a patient, citizen of the US, and advocate, and trained adjunct medical provider, is this petition valid when offered over the internet?
We need powerful voices, and those who are willing and capable of getting before, in-front, next to, and all ways with the powers that be. How can this be done? There are many who want our voices squealched! There are many providers who are almost like, ’snake charmers,’ trying to make money off conditions/diseases they know very little about. There are those who care and want to help, but the resources are limited. We have a major break-down in the healthcare ‘industry,’ which includes insurance, medically qualified practitioners, and those individuals, as stated, who do not believe those of us suffering, and/or do not belong caring for people who are in these perils.
We need attention, direction and action.
Sincerely,
Suzie
Cinda Crawford 07.06.10 at 1:15 pm
Hello Suzie, Thanks for your thoughtful post and valid question. I assume (dangerous word) that any petition can collect names and be sent to the parties of action. (There are lots of petitions that get sent to congress, etc., with many goals.) Whether “they” pay attention or not is anyone’s guess. I think most of the time many government and health officials ignore everything concerning these illnesses. Only public outcry, notariety, and action have a chance at propelling the issues forward. My aim is that if I can do anything reasonable to help, I will do it. I’ve been at the “business” of being sick and now being well for over 20 years and I know 2 things: 1) I don’t get too upset at any one occurrence. It too shall pass. and 2) I have to take action when I can. If not “me”, who do I have to blame for inaction? And as for the people on the Internet making money off the illnesses, I guess you can attribute that to 2 things, too. 1) The illnesses have gained a significant number of patients and notariety to garner more attention. Snake charmers or not, look at what the drug industry is doing! YIKES!! and 2) There are legitimate people trying to help people get well. I know because I am one of them. I can’t speak for anyone else. Keep in touch and please come back, Cinda