Sometimes we feel as if we can do so little to help with a huge problem like the research and funding necessary to find the “cause” of something so big as Chronic Fatigue Syndrome/ ME (Myalgic Encephalomyelitis, as it’s called in the United Kingdom).
But one lady is putting her mouth and fingers into action as a patient advocate. She has written a letter to the Bill and Melinda Gates Foundation requesting that they consider research funding of the illness. She simply asks what she can do to make that happen. As elementary as that sounds, it is bold action. It’s taking a step forward and acting. This lady’s name is Heidi Bauer.
Here is a link to the public version of Heidi’s letter. I hope you take the time to read it and decide what you, too, can do to add to the momentum that this time of year is building and building. We call it awareness.
Public awareness of this illness does not hinge on one press release or one research study. Not even on one government study or report. Awareness begins with all of us and builds to a crescendo where the public cannot ignore our message that the main questions about Chronic Fatigue Syndrome/ ME have not been answered and should be answered right away.
Thanks so much for putting on your thinking cap today,
Cinda Crawford, host of the Health Matters Show
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