Comments on: Fibromyalgia Isn’t Real? Who says?

By: Cinda Crawford

Cinda Crawford — Wed, 10 Mar 2010 17:56:06 +0000

I was so excited looking at the video you refer to until I realized that it’s linked to another huge drug corporation. I guess I shouldn’t be, because they’re the ones with the big bucks to do such huge advertising campaigns. And because of that, I’m a tad disappointed with the Fibromyalgia Association., too If they crawl in bed with big pharma, where does that leave the people who need them to be impartial?

By: Cinda Crawford

Cinda Crawford — Wed, 10 Mar 2010 17:49:12 +0000

Hello Mac, I appreciate you sending in this comment. However… not saying Fibromyalgia, as a “disease” isn’t real, is very misleading. No one that I know of classes Fibromyalgia as a disease process. Fibromyalgia symptoms certainly exist for millions of people, but because no cause, little methodology in treatment or a “cure” is available through western medicine, FMS is classed only as a syndrome. Does that make it less important? Less timely? Less worthy as an illness that people need answers for? Absolutely not. I read the article you suggested and I believe it suggests that because medicine has not been able to nail down those facts that somehow the desperate patients must be at fault- in some way. I hope the Rheumatologists rethink that position. I know they (rheumys) were backed into a corner years ago when FMS did not neatly fit into the medical specialty of Rheumatology, yet that was where it landed. They got “stuck” with it and all the Fibromyalgia patients. Well, guess what? The millions of sufferers are stuck, too! So instead of backing up or backing away, I’d love to see more support for these people from the entire medical community. No, not everyone has to complain as much as they do. No, some could certainly have a more hopeful, happy attitude… but it my opinion, most people do the best they can do at the time. Personally, I offer hope and help. That’s what I can do. If people choose to take the hope & help, great. If they don’t, I’m praying they find helpful answers somewhere else. Certainly it helps if people actively seek positive answers; that a no-brainer. Anyone will see improvement in his or her health by moving forward! But it’s not an ethical thing to abandon people in their time of greatest need. We a’re all entitled to our opinions and, trust me, I respect your opinion and your struggle to gain a full recovery. I pray that your story, too, may an inspiration to others.

By: Mac

Mac — Wed, 10 Mar 2010 05:35:42 +0000

Fibromyalgia isn’t real — the pain is, but the “disease” isn’t. Please read this article and consider whether you want to be promoting a fibromyalgia diagnosis: http://www.jrheum.com/subscribers/03/08/1665.html

Please take into consideration that I myself have lived for several years now with a debilitating amount of widespread chronic pain that has been diagnosed as fibromyalgia. I’m fighting for the full recovery of my health and for a greater sense of well-being for myself and for all chronic pain suffers when I say that I believe the fibromyalgia label is much more hurtful than helpful. Please read the article and decide for yourself.

By: Sue Ingebretson

Sue Ingebretson — Tue, 09 Mar 2010 16:23:42 +0000

The newest National Fibromyalgia Association Public Service Announcement provides a great resource for those wishing to better understand the Science Behind Fibromyalgia. Watch it at http://www.fmaware.org or directly from YouTube.

http://www.youtube.com/watch?v=URvRAUtFcvY

By: Claudine

Claudine — Tue, 09 Mar 2010 03:41:29 +0000

I have CFS/ME & Fibromyalgia. I know all too well how real it is. Swollen lymph nodes and severe pain, fevers, chills, post-exertion malaise, cognition problems, etc. Those aren’t “in my head.”

By: Fibromyalgia Pain Relief

Fibromyalgia Pain Relief — Tue, 09 Mar 2010 03:39:06 +0000

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