Both of the resources that I passed along to you yesterday about Myalgic Encephalomyelitis, ME/CFS (Chronic Fatigue Syndrome), should help you to get informed about the illness and help you manage its affects for your child or in young people.
However both of these resources are inadequate to use alone. Yes, there are books, reports and lots of information on healing mechanisms that you can find, but nothing adds more value and long term help to your young person being sick more than an older relative or friend giving personal time, attention and interest to them in seeing that they live as healthfully (e.g. “full of health”) as possible.
That surely offers them the best chance to get well that you can facilitate happening. Go the extra mile and search for data and resources that take a bit more digging to uncover, but are likely to be the very things that will provide the biggest benefit.
Audio: click the right facing arrow and listen to this week’s Health Matters Show audio podcast file right here on the website -or- download it for later. It is 31 minutes 25 seconds in length and packed full of helpful information!
Plus, the guide I talked about yesterday does not mention the wisdom of seeing any particular specialist beyond a counselor or psychiatrist. [That's probably because this guide originates from Europe, specifically the United Kingdom (UK). In that part of the world, Myalgic Encephlomyelitis (ME/CFS) is considered to have more of a psychological basis or cause.] Please do not accept this opinion as the gospel truth.
ME/CFS represents itself to be a complicated, multi-symptom illness that manifests differently in different people. To think that someone can will himself to become sick with ME/CFS or simply cause it to occur because of a psychological hangup or problem is so utterly ridiculous that those words are hard to even write. It is beyond me how this remains a prevailing and popular opinion in some circles throughout the UK.
NOTE: There are specialists all over the world who can help you figure out ME/CFS. In the United States there are a number of doctors who specialize in Fibromyalgia, Chronic Fatigue Syndrome and ME/CFS. For the parents and friends of young patients, there are also adjunct, alternative medical therapies and protocols which may help your young one recover. I encourage you to look into them. Such activities and protocols include:
- meditation (which is therapeutic for most people) -and- mindfulness
- yoga
- tai chi
- acupuncture
- reiki
- chiropractic care
- stretching
- massage
- moderate exercise like warm water pool therapy or walking if possible. If it’s not, forego this level of activity until the body is stronger.
- add-on vitamins, supplements, essential oils and nutraceuticals to build up the body and foster good health (Note: the audio includes a couple of suggestions. Find others by searching for “essential oils” here on this website.)
- actual healing protocols created and administered by alternative health practitioners, like me. I use a proprietary healing method that I developed called Sacred Cellular Healing. It is designed to encourage the body to repair itself and be healthy again. It is effective face-to-face and in person or it is equally effective when done at a distance over the telephone.
Few if any of these possibilities are mentioned or even hinted at in the European how-to guide, but you can and should check them out. This is your decision and your responsibility. Your young person needs you to help find a way for him or her to be healthy again!
Decide if any measures are appropriate to introduce into their world. Many of the choices, like Sacred Cellular Healing, are designed to encourage the body to heal itself, which is very possible. Consider that the body heals itself all the time from all kinds of ailments. How, you ask? Because God designed it that way and it’s still possible.
If you happen to come across additional ideas or know of other helpful tools for children, young people and parents who find themselves in this situation, please send them in here to the Health Matters Show and I will post them. I welcome your comments below.
Thanks, Cinda Crawford
Host of the Health Matters Show
PS- Stay tuned to the Health Matters Show on a daily basis if you can. I’m writing an entire series on ME/CFS which should prove to be informative and helpful to lots of people.
PPS- To help you find additional information and assets for you and the young people in your life affected by ME/CFS, check out the Association of Young People with ME.
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Linda 12.05.09 at 6:52 am
Early correct diagnosis and early correct treatment offer the best chance of full recovery for a child or young person wit ME/CFS.
Here in Belgium Prof. De Meirleir is doing great work for children with ME. And there are others like him in different parts of the world.
Don’t take the risk of comprising your child’s future by wasting time with nonsense treatments, but please urgently seek the help of those who are really knowledgeable about ME.
Cinda Crawford 12.05.09 at 10:29 am
Thank you so much Linda for your comment. Dr. Meirleir is certainly doing phenomenal work. He’s one of the top experts in the world working on the cause of ME/CFS. I follow his work closely. Unfortunately, many of the answers about the illness still elude science. Let’s hope they finally can fill in all the pieces of the puzzle soon. Maybe they will with XMRV coming to such prominent attention!
I’m wondering… do you believe that people should dismiss possible remedies just because they aren’t proposed by mainstream medicine?? I believe that when you have a child or young person with ME/CFS, you often have only a short window to act before the disease process sets in for the long haul. To assume that medical science will provide you with the perfect answer in time for you… well, so far, twenty + years of history has shown that that’s not a dependable philosophy. Few “useable” answers of any kind are available in the realm of traditional medicine and certainly none concerning a cure. People are, however, finding help and real hope from alternative sources.
I encourage other people’s input. What do you think? What is your experience? Let’s keep this discussion going