Comments on: CFS/ME: The Walking Wounded

By: Health Matters Show: Presenting Cognitive Behavior Therapy (CBT) | The Health Matters Show With Cinda Crawford

Fri, 04 Jun 2010 13:17:47 +0000

[...] It’s actually the long term answer for healing because “real healing” begins from a comprehensive health approach that is positive, correct and promotes true health. The problem with the UK philosophy is that it is often said to be exclusive and harmful -and- that it views sick ME/CFS people as mental “head” cases. The patients are not accepted as having worthy medical conditions by the medical establishment and so are deemed “un-worthy” of receiving legitimate, comprehensive care. That attitude improves no side of the equation, as evidenced by the scores of very sick people in the UK, who are leading lives of misery, many even contemplating or committing suicide or facing certain death. [...]

By: Cinda Crawford

Cinda Crawford — Sat, 22 May 2010 17:19:59 +0000

I agree that it’s sad Kimberley, but tragic stories are everywhere. That’s because millions of people are suffering. Thanks so much for sending in your comment. I wish you well this glorious day and hope that you are “not” suffering! Cinda

By: Cinda Crawford

Cinda Crawford — Sat, 22 May 2010 17:18:28 +0000

When I was a support group leader, we lost people to suicide, too. I remember the first time it happened and the dark cloud that seemed to hover over the whole group. I actually envied the newer people who did not know the person who we lost. No matter how you look at it, there have to be better answers than that. I’m so glad that you are finding gifts to help you and others. I have taken the same path in offering healing help to those people who I can help get over Fibro & CFS. If you want to know more, give me another shout. Cinda

By: Delaine

Delaine — Sat, 22 May 2010 03:51:51 +0000

I was a support leader for 6 or 8 yrs of course I can not remember how many years the memory is still impaired. We lost four to suicide that we know of not all were from our group but there are two from our small group who have died from cancer Ovarian and Brain, I have recovered but still suffer from pain, intermittent fatique, my energy level has improved but it is nessecary to watch my schedule and activity level or I go down hill. I have multible problems bladder, bowel, digestive and pain the migrains have all but gone so there is hope out there for some. I learned three important things since my sudden onset. My gosh it has been almost 18 years since my my life came crashing down on me anyway 1. Nothing is worth the energy lost in confict 2.Reach out and help someone else there is a magic healing in giving to others. 3. Write for healing, journel, write stories either make believe or true, or just free write it releases demens that are lock in your memory; demens that keep your spirit from healing. Remember the most important thing is “do not give up” and “you are not your illness” You have gifts and you still have something to give, find the magic.

By: Kimberley Linstruth-Beckom

Kimberley Linstruth-Beckom — Sat, 22 May 2010 02:34:59 +0000

This is such a sad story to hear, however, I’m glad it’s out there because maybe it will help others to see that diseases like ME, FMS, and CFS should be taken seriously.

By: Cinda Crawford

Cinda Crawford — Fri, 21 May 2010 17:59:06 +0000

I know a lot of people who are interested in ME (Myalgic Encephalomyelitis), as well as having many followers who suffer with Fibromyalgia and Chronic Fatigue Syndrome. I hope we can support each other by supporting this message when and as best that we can. Considering the many similarities of all these illnesses, we would do well to bolster each other’s efforts. This story of Sophia Mirza’s mother being there the best way she knew how “for” her daughter is touching, important and timely– considering that we just celebrated International Fibromyalgia and Chronic Fatigue Syndrome (CFS/ME) Awareness Day and week. We don’t need any further suicides or assisted deaths if there is something that can be done to relieve suffering and help people get healthy again. Don’t you agree?? Please send this post to your friends and please comment. Thank you for your efforts and support of each other.

By: Tweets that mention CFS/ME: The Walking Wounded | The Health Matters Show With Cinda Crawford -- Topsy.com

Fri, 21 May 2010 14:15:00 +0000

[...] This post was mentioned on Twitter by Cinda Crawford, Robin Thomas. Robin Thomas said: HealthMatters: CFS/ME: The Walking Wounded: CFS/ME is a generally accepted term coined for the similar and combina… http://bit.ly/bB0i7C [...]