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	<title>The Health Matters Show With Cinda Crawford &#187; Caregiver Info</title>
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	<link>http://healthmattershow.com</link>
	<description>Fibro blog Chronic Fatigue Syndrome blog How to heal Fibro and CFS</description>
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		<title>Feeling Down, Being Sad</title>
		<link>http://healthmattershow.com/feeling-down-being-sad/</link>
		<comments>http://healthmattershow.com/feeling-down-being-sad/#comments</comments>
		<pubDate>Fri, 09 Sep 2011 14:20:09 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Health Matters Shows]]></category>
		<category><![CDATA[Mental & Emotional Issues]]></category>
		<category><![CDATA[What do you do if you're really sick?]]></category>
		<category><![CDATA[being sad]]></category>
		<category><![CDATA[caregiver]]></category>
		<category><![CDATA[cfs]]></category>
		<category><![CDATA[Chronic Fatigue Syndrome]]></category>
		<category><![CDATA[depression]]></category>
		<category><![CDATA[feeling down]]></category>
		<category><![CDATA[feeling sad]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[fms]]></category>
		<category><![CDATA[me/cfs]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=24433</guid>
		<description><![CDATA[Listen to tips and information about feeling sad and being down- a.k.a. depression- with Fibromyalgia and Chronic Fatigue Syndrome on the Health Matters Show.]]></description>
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<p>The words <strong>feeling down </strong>and <strong>being sad</strong> often mean more for a sick person than the lines of a familiar song.</p>
<p>Feeling down can describe your mental outlook or, maybe even, your general state of health. Feelings of being sad can linger for more than an hour, a day or a week. How are you coping?</p>
<p>If you suffer with <strong>Fibromyalgia</strong> (<strong>FMS</strong>) or <strong>Chronic Fatigue Syndrome</strong> (<strong>CFS</strong> or <strong>ME/CFS</strong>), you may find that you go through some pretty rough times because you feel terrible and -<em>stark truth- you may not be getting well</em> -or- <em>your health may not be improving</em>. You actually may need more interaction with your <strong>caregiver</strong>- more often and on a deeper, more personal level than you normally experience together. It&#8217;s common to find solace in talking to friends, however, please don&#8217;t indulge in a lengthy pity party. Remember: your goal is to find your way out of <strong>depression</strong> or depressed mood, not wallow in its misery too long, or worse yet, indefinitely.</p>
<p>With much of the world getting ready for a season change, know that the fall months can sometimes trigger a change in your symptoms, too, or aggravate feelings of depression. Instead of giving into that process, I urge you to listen to today&#8217;s <strong>Health Matters Show</strong>. We&#8217;re talking about this topic and some tips for dealing with this important health issue, including how to make the best use of a caregiver or friend.</p>
<p>&nbsp;</p>
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<p><!-- AudioAcrobat.com Player code END -->The podcast today is 7 minutes 46 seconds. Play it here or feel free to download. Then continue down the page for the rest of this post. <img src='http://healthmattershow.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /><br />
<span id="more-24433"></span><br />
Should you naturally assume that you&#8217;re depressed? Please don&#8217;t. Having actual clinical depression may or may not be a diagnosis for you. It depends on many things. In the meantime, study and learn more about &#8220;depression&#8221;. If you still feel blue, contact a medical or psychiatric professional to help you handle this potentially serious health problem.</p>
<p>*Note: there are lots of people who would love to hear your thoughts, so feel free to write a comment below. Share how you beat mild or strong depression, how depressive symptoms are affecting your life and about your ongoing struggles with this challenging part of long-term illness => DEPRESSION. Comment if you struggle with feeling down, being sad or you want to speak out about depression. **Feel free to use a fictitious name if you like, but keep your story <em>real</em>. Reach out and share your struggles and your successes. If your story is meaningful, it may help other people who are struggling.</p>
<p>Then &#8220;share&#8221; this post on Facebook, Twitter, Digg or wherever you hang out online. Thanks so much and have a happy, healthy day!<br />
Cinda Crawford, host of the <a href="http://www.healthmattersshow.com"><strong>Health Matters Show</strong></a></p>
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		<title>Fibromyalgia Symptoms</title>
		<link>http://healthmattershow.com/fibromyalgia-symptoms/</link>
		<comments>http://healthmattershow.com/fibromyalgia-symptoms/#comments</comments>
		<pubDate>Fri, 26 Aug 2011 15:15:34 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[Health Matters Shows]]></category>
		<category><![CDATA[What do you do if you're really sick?]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[Fibromyalgia symptoms]]></category>
		<category><![CDATA[Fibromyalgia video]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=24333</guid>
		<description><![CDATA[For a great list of Fibromyalgia Symptoms, a mini-workbook, Fibromyalgia video and more, visit the Health Matters Show with Cinda Crawford.]]></description>
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<p>&nbsp;</p>
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<p>&nbsp;</p>
<p>I have constructed this <b>Fibromyalgia Symptoms video</b> to give you or anyone (who you want to see it) a good, initial overview of Fibromyalgia symptoms. Fibromyalgia is a complicated illness and sometimes it is difficult to know where to begin within yourself, with your family, friends or <b>caregivers</b>. I have high hopes that you can use this information to improve communication with your doctors.</p>
<blockquote><p><i><b>Note: Most caregivers only know what you tell them. Suggestion? Set them in front of your computer to watch this video. It&#8217;s not overly dramatized. Simply factual and accurate. Hopefully after the presentation, you will both be open to a deeper discussion about your Fibromyalgia symptoms and how the illness affects your life!</i></b></p></blockquote>
<p>Before you go today, be sure to grab yourself a copy of everything included in today&#8217;s Fibromyalgia video (plus I&#8217;ve included room for your personal notes) <a href="http://www.getwellhealth.com/fibromyalgiasymptomsbinder.pdf"><strong>by clicking here</strong></a>! Feel free to make copies of this great little guide to use 1) to help you decide where you are with the illness, 2) what you need to study further and 3) how to approach your next doctor&#8217;s visit!</p>
<p>Yes, it&#8217;s a goodie that&#8217;s worth keeping. And finally, let me encourage you to check back with the Health Matters Show for blog posts, audio podcasts and video podcasts concerning Fibromyalgia Symptoms and more. This is one video of many!</p>
<p>Thanks, Cinda Crawford<br />
Your host</p>
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		<item>
		<title>What Do You Know About Fibromyalgia?</title>
		<link>http://healthmattershow.com/what-do-you-know-about-fibromyalgia/</link>
		<comments>http://healthmattershow.com/what-do-you-know-about-fibromyalgia/#comments</comments>
		<pubDate>Wed, 24 Aug 2011 17:33:48 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Fibromyalgia]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[Fibromyalgia symptons]]></category>
		<category><![CDATA[What do you know about Fibromyalgia]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=24402</guid>
		<description><![CDATA[What do you know about Fibromyalgia? The Health Matters Show is tackling this topic for you, your caregivers and your doctors. Check it out.]]></description>
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<p>When I ask most people, &#8220;What do you know about <strong>Fibromyalgia</strong>?&#8221;, I get answers from not so much -to- a fair amount. Chances are, if you&#8217;re suffering with something, you make a point of learning more about it. I hope you&#8217;re doing that here at the Health Matters Show for Fibromyalgia.</p>
<p>On Friday I feature a brand new video entitled: Fibromyalgia Symptoms. It&#8217;s short, precise, factual and I believe you&#8217;ll find it valuable. To get the most use of it for yourself, your <strong>caregivers</strong> and your medical support team, be sure to also grab a copy of the pdf document that will be included in the blog post. (*Your caregivers probably have a rough time understanding the necessary facts about the illness and how it affects your life. How can they figure out what to do for you, if they don&#8217;t have a basic understanding of Fibromyalgia???)</p>
<blockquote><p>In preparation for Friday&#8217;s Health Matters Show video broadcast, if you don&#8217;t have a pdf reader software program on your computer, go ahead and grab yourself a &#8220;free&#8221; copy here, <a href="https://www.download-free.com/adobe-reader&#038;source=ga" target="_blank">the Adobe Reader</a>.</p></blockquote>
<p>Thanks so much and set your schedule to return here on Friday for the video and more!</p>
<p>Cinda Crawford, your host and author of, &#8220;What do you know about Fibromyalgia? and the new &#8220;Fibromyalgia Symptoms video&#8221;, launching shortly.</p>
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		<title>Celebrating Earth Day: 3 Projects You Can Do</title>
		<link>http://healthmattershow.com/celebrating-earth-day-3-projects-you-can-do/</link>
		<comments>http://healthmattershow.com/celebrating-earth-day-3-projects-you-can-do/#comments</comments>
		<pubDate>Fri, 22 Apr 2011 13:34:03 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Announcements]]></category>
		<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Health Matters Shows]]></category>
		<category><![CDATA[Mental & Emotional Issues]]></category>
		<category><![CDATA[What do you do if you're really sick?]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[celebrating earth day]]></category>
		<category><![CDATA[earth day]]></category>
		<category><![CDATA[earth day 2011]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=22968</guid>
		<description><![CDATA[Celebrating Earth Day: Here are 3 Easy Projects you can do that may help your health while not jeapardizing it. Now, go out and celebrate!]]></description>
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<p><b>Earth Day</b> 2011 is celebrated today, Friday April 22nd. Here are 3 projects you can do to begin a little celebration of your own and help your health out, also. </p>
<blockquote><p>Now&#8230;you may think that anyone who is ill from Fibromyalgia or Chronic Fatigue Syndrome may not be capable of doing a lot of celebrating, Earth Day or not. I beg to differ with you. Earth Day was developed with our whole, natural earth in mind. People who cherish our natural resources and all they add to our lives want one day a year to say, &#8220;Thanks.&#8221; That means taking the time today to celebrate  <i>everything</i> in your world.</p></blockquote>
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<b>Project #1: Smile.</b> Give thanks for your world. For the people who are in it, like your family, friends and <b>caregivers</b>. Caregivers are some of the giving-est people around and they really appreciate your noticing what they are doing for you and how they are adding to your quality of life.</p>
<p><b>Project #2: Do <i>something</i> for someone else.</b> Call them on the phone. Send flowers or chocolates. Send an email or an e-card. Go for a short visit. People love to be noticed. It makes them feel good about themselves and they will be glad you are their friend.</p>
<p><b>Project #3: Be thankful.</b> We&#8217;re all kinda-sorta thankful most of the time. Earth Day is a good day to express your gratitude all the way around. Spread the blessings. Let others know how you feel. Rejoice in your spirit!</p>
<p>Yes, share the bounty of this fine planet that we live on by smiling, doing and thanking. Your caregivers will be pleased. Your family will be caught off-guard. Your whole self may feel better physically, emotionally and spiritually! (I invite you to listen to the podcast today. There are other &#8220;Celebrating Earth Day&#8221; suggestions there PLUS a <b><i><font color="2f8c8c">very special announcement!</font color></i></b></p>
<p>Have a fantastic day, Cinda Crawford<br />
Your host of the Health Matters Show</p>
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		<title>Help for CFS -or- 4 CFS Survival Tips</title>
		<link>http://healthmattershow.com/help-for-cfs-or-four-cfs-survival-tips/</link>
		<comments>http://healthmattershow.com/help-for-cfs-or-four-cfs-survival-tips/#comments</comments>
		<pubDate>Tue, 05 Apr 2011 18:07:34 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Chronic Fatigue Syndrome]]></category>
		<category><![CDATA[Living and Surviving]]></category>
		<category><![CDATA[caregiver]]></category>
		<category><![CDATA[CFS tips]]></category>
		<category><![CDATA[help for CFS]]></category>
		<category><![CDATA[less stress]]></category>

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		<description><![CDATA[Help for CFS and four CFS survival tips: Learn how they can help you and your caregiver survive with less stress and more success.]]></description>
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<p id="__mce"><a href="http://healthmattershow.com/wp-content/uploads/2010/08/Image5.jpg"><img class="alignleft size-medium wp-image-18507" title="Help for CFS- CFS Tips" src="http://healthmattershow.com/wp-content/uploads/2010/08/Image5-300x296.jpg" alt="" width="150" /></a><br />
Do you need a little <strong>help for CFS</strong>?</p>
<p>Could you use <strong>4 CFS Survival Tips</strong>?</p>
<p>If you&#8217;re like most people, you need all the help for surviving CFS that you can get and with <strong>less stress</strong>. And, you need the help now!</p>
<p><strong><span style="font-size: small;">4 Easy Survival Tips to Keep in Mind:</span></strong></p>
<p><strong>1: Except on the hottest of hot days, take a hooded jacket or coat with you wherever you go.</strong><br />
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Most CFS folks cannot stand drafts and they sure can&#8217;t stand the cold. What is worse is trying to remember where your unbrella is or if you brought it with you at all. If you always always wear or bring along a hooded outer wrap, you&#8217;ll be safer. You won&#8217;t risk getting soaking wet or freezing cold&#8230;even in air-conditioning. Spring showers and hot, summer weather are coming!</p>
<blockquote><p><em>This tip is close to a tip I&#8217;ve written about previously for <a href="http://healthmattershow.com/managing-fibromyalgia-symptoms-and-weather-changes/">Fibromyalgia</a>&#8230;dress in layers. Dressing in multiple layers works because you can put on or take off clothes as your body&#8217;s temperature regulation needs require. This extra tip works marvelously when you&#8217;re truly sick with chills or fever -and- when you&#8217;re suffering with menopause, too!</em></p></blockquote>
<p><strong>2: Design and set up an old-fashioned, flat-type plastic box to hold your pills and supplements.</strong> Mark each section of the container with the name of the RX or OTC (over-the-counter) compound, the strength and how many times you&#8217;re supposed to take it each day. That way there will be less chance of you grabbing the wrong pill when you&#8217;re bleary-eyed and tired.</p>
<p>Also, if you can get in the routine of pulling out your &#8220;box&#8221; when you get up each morning, you&#8217;ll be more apt to remember to take your meds on time and as you should. *If someone else is helping you, a <strong>caregiver</strong>, he or she also can more fully understand and see what you need. Remember that being a caregiver isn&#8217;t easy and the easier you can make it for them to help you, the more satisfied the arrangement is for all concerned.</p>
<blockquote><p><em>I find that a plastic box designed to hold fishing lures works great for me. I&#8217;ve always picked up cheap ones at the dollar store. They usually are designed with small and large sections. That way I can put the bigger, horse-pill-sized vitamins in the bigger sections and smaller pills in the smaller sections. Each container usually has a plastic &#8220;lock&#8221; which helps to keep it closed, but if that breaks you can use a huge rubberband to keep it shut tight. Such a box will help you stay organized for traveling. </em></p>
<p><em>If you use it for that purpose, too, keep a copy of your prescriptions handy if anyone needs verification of what you&#8217;re taking. Even so, that&#8217;s better than trying to travel with twenty pill bottles rattling around in your bag. This type of flat box packs easily in the middle of your suitcase.</em></p>
<p><em>*Remember to be especially careful to keep the case out of the reach of small children. The pretty-colored pills might be a temptation!</em></p></blockquote>
<p><strong>3: Set up some type of easy-to-set alarm function on your cell phone.</strong> I believe all cell phones these days come with an alarm function. By setting up your daily to-do&#8217;s ahead of time, even what medications you&#8217;re supposed to take when, you&#8217;ll be more organized and fell less stress. My phone also comes with a calendar function. I put in my daily, weekly and monthly appointments and regularly scheduled fun activities, like going to water aerobics. Doing this one thing alone will help to keep you more organized, too, and on target. You&#8217;ll be able to accomplish what you want to do with less stress. See how easy this is? Just take the time to learn how to do the scheduling. If you can&#8217;t figure it out by yourself, get help.</p>
<blockquote><p><em>*This type of scheduling also helps when you&#8217;re suffering with brain fog and low energy. All you have to do is keep up with your cell phone!</em> <img src='http://healthmattershow.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p></blockquote>
<p><strong>4: Let your home computer be your extra, back-up brain</strong>. Now what I mean is&#8230;don&#8217;t try to remember everything! That high an expectation can keep you stressed out and clawing your way through the perpetual brain fog trying to find the top of your to-do piles! Instead, allowing your home computer, I-Pad or whatever to store vital information can save you a lot of heartache, worry and self-chastisement. <em>You can be this smart and feel less stress. WHOOPEE!</em></p>
<p>Dear one, let&#8217;s face it&#8230;.we all forget things. Personally, I try to remember very little. I depend on these last two survival tips in particular to boost my brain power and my productivity. I stay happier and feel more in control when I incorporate this into my daily life. They also help my caregiver, my husband. He doesn&#8217;t have to do much for me anymore, but I find that he <em>checks up on me</em>. It seems to ease his mind when he sees that I&#8217;m handling myself well. That, in turn, helps him and we both live with less stress.</p>
<p>Do the four tips always work? No, but they do most of the time. Try these suggestions and let me know how you do. And, if you have other great suggestions yourself, please comment and leave them for other readers.</p>
<p>We&#8217;re all in this together!<br />
Thanks, Cinda Crawford<br />
Your host of the Health Matters Show</p>
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		<title>Caregivers: &#8220;Felix the Cat&#8221; has something to share!</title>
		<link>http://healthmattershow.com/caregivers-felix-the-cat-has-something-to-share/</link>
		<comments>http://healthmattershow.com/caregivers-felix-the-cat-has-something-to-share/#comments</comments>
		<pubDate>Mon, 22 Nov 2010 13:47:26 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[Videos]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[Felix the cat]]></category>
		<category><![CDATA[getting help from friends]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=20275</guid>
		<description><![CDATA[If you have Fibromyalgia or Chronic Fatigue Syndrome, you're wondering about getting help from friends and caregivers. Take a quick look at Felix the Cat.]]></description>
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<p><a href="http://healthmattershow.com/wp-content/uploads/2010/11/Felix-the-Cat.jpg"><img src="http://healthmattershow.com/wp-content/uploads/2010/11/Felix-the-Cat.jpg" alt="" title="Felix the Cat" width="180" class="alignleft size-full wp-image-20295" /></a>Caregivers and Patient Alert: the little boy in this <strong>Felix the Cat</strong> story knew that sometimes <b>getting help from friends</b>, in this case Felix and an uninvited goat, can be easy at first glance, but it isn&#8217;t always what you need. Even today, being cared for, ministered to and -plain ole- <em><strong>loved</strong></em> can be a challenge. Old friends may wander toward greener pastures where new friends can keep up with them and have fun! Family &#038; loved ones may desert you, the patient, if you&#8217;re too much of a bother, require too much care or if it gets too expensive.</p>
<p><center><b>Caregivers of the world&#8230; say it ain&#8217;t so!</b></center></p>
<p>If you are a person who is suffering with Fibromyalgia or Chronic Fatigue Syndrome (or some similar illness that has left you depleted, in pain and chronically ill), are you coming back to your friends and loved ones (e.g. caregivers) time and time again asking for more help, deeper understanding and assitance that is above and beyond the call of duty? And you&#8217;re doing it all too often?<br />
<span id="more-20275"></span><br />
That could spell trouble. If there&#8217;s a chance that this is happening, I encourage you to playfully consider Felix the Cat and the little boy in this old animated, video cartoon today.</p>
<blockquote><p><i><b><font color="2f8c8c">I love the old cartoons, however, this one was produced way before my time. The help the little boy believes he&#8217;s receiving is not the help that will keep him out of trouble. Just the opposite. Now&#8230; granted I am stretching the message of this cute little ditty to fit my purpose here, but I have a reason. I&#8217;m suggesting that you think twice before jumping to get your needs met. That objective goes hand in hand with Friday&#8217;s <a href="http://www.healthmattershow.com/victorious-over-chronic-illness-or-not/"><strong>Health Matters Show</strong></a> post of deciding for yourself how you choose to &#8216;live with&#8217; your chronic illness, how you will leave it behind you, how you finally will get healthy and how you can live a healthy lifestyle&#8211; again!</font color></i></b></p></blockquote>
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Take a moment to ask yourself if you&#8217;re getting help from your friends and caregivers that really is helping you improve your life, getting healthier and living as a happier, more well-rounded <strong><em><span style="font-size: medium;">YOU!</span></em></strong> Those are the goals. Our caregivers can be valuable members of our wellness team.  <img src='http://healthmattershow.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
<p>Thanks, Cinda Crawford</p>
<p><center><b><font color="2f8c8c">GOAL: Don&#8217;t make getting help from friends your only goal. You&#8217;ll need them from time to time. Learn to stand on your own as best you can. It will make you feel better about yourself and be more resilient.</font color></b></center></p>
<blockquote><p>Felix wants to swim and ask someone to go with him. The boy has to play piano. But because Felix saved a mouse, the mouse arranges other mice to play on the piano and the boy goes with Felix for a swim. Then a goat eats the boy&#8217;s and Felix&#8217;s clothes. They go home dressed in a barrel!</p>
<p>THE MOVIE HISTORY OF <strong>FELIX THE CAT</strong></p>
<p>Felix the Cat first appeared on screen as &#8220;Master Tom&#8221; in FELINE FOLLIES released on September 1, 1919. Due to the enormous popularity of his first Felix film, Paramount Studios signed a two year deal with Pat Sullivan to create one Felix the Cat film per month. Pat Sullivan credited himself with the creation and animation of Felix., Actually, his employee Otto Messmer had the original idea for Felix and animated all of the Felix the Cat films. Felix the Cat enjoyed celebrity status and quickly became a household name in anada, the U.S. and abroad in England, Germany, Australia, and China. Felix became one of the most famous stars of the 1920&#8242;s, rivaling Charles Chaplin and Buster Keaton. The Prince of Wales picked Felix the Cat as his Polo Team mascot and a picture of Felix accompanied Charles Lindbergh in his historic solo-flight across the Atlantic. In 1923, a Felix the Cat comic strip was created and ran in newspapers until 1943. It was very popular during WWII.<br />
In 1927, the first giant balloon in the MACY*S Thanksgiving Parade was Felix The Cat. In 1928 Felix&#8217;s popularity was threatened by the release of the first Disney sound animation film STEAMBOAT WILLIE starring Mickey Mouse. Sullivan and Messmer tried to move Felix into sound pictures, but their attempts failed because their sound effects rarely matched the action on the screen. By 1930, Felix the Cat had been replaced in popularity by Walt Disney&#8217;s SILLY SYMPHONIES series of movie cartoons.</p></blockquote>
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		<title>Caregivers: Take Care</title>
		<link>http://healthmattershow.com/caregivers-take-care/</link>
		<comments>http://healthmattershow.com/caregivers-take-care/#comments</comments>
		<pubDate>Wed, 27 Oct 2010 02:59:57 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Videos]]></category>
		<category><![CDATA[What do you do if you're really sick?]]></category>
		<category><![CDATA[caregivers]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=2112</guid>
		<description><![CDATA[On the Health Matters Show today, we bid a 'thank you' to all the caregivers of Fibromyalgia and Chronic Fatigue Syndrome patients. Enjoy the video.]]></description>
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<p>For all the caregivers in your life and mine, I bid them to&#8230;<strong><em> take care of yourself</em></strong>.</p>
<blockquote><p><strong><em><span style="color: #2f8c8c;">Without you, we would be lost&#8230; or at least, badly ailing. There would be no afternoon snacks, no clean linens, no back rubs and no personal taxi services to the doctor&#8217;s door.<strong><em><span style="color: #2f8c8c;"><strong><em><font color="#2f8c8c">Caregivers, take care. Bless you in all that you do. May your burdens be light, your return smiles be many and may we always say, &#8216;Thank you.&#8217;</span></em></strong></p></blockquote>
<p>Cinda Crawford</p>
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		<title>CFS/ME: The Walking Wounded</title>
		<link>http://healthmattershow.com/cfsme-the-walking-wounded/</link>
		<comments>http://healthmattershow.com/cfsme-the-walking-wounded/#comments</comments>
		<pubDate>Fri, 21 May 2010 13:45:49 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Chronic Fatigue Syndrome]]></category>
		<category><![CDATA[What do you do if you're really sick?]]></category>
		<category><![CDATA[cfs]]></category>
		<category><![CDATA[cfsme]]></category>
		<category><![CDATA[me]]></category>
		<category><![CDATA[Myalgic Encephalomyelitis]]></category>
		<category><![CDATA[Sophia Mirza]]></category>
		<category><![CDATA[walking wounded]]></category>

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		<description><![CDATA[Explore the case of Sophia Mirza, the first ME death in the UK and how her CFS/ME related illness affects you and your life.]]></description>
			<content:encoded><![CDATA[<div class="tweetmeme_button" style="float: left; margin-right: 10px;">
			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fhealthmattershow.com%2Fcfsme-the-walking-wounded%2F"><br />
				<img src="http://api.tweetmeme.com/imagebutton.gif?url=http%3A%2F%2Fhealthmattershow.com%2Fcfsme-the-walking-wounded%2F&amp;style=normal&amp;b=2" height="61" width="50" /><br />
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<p><a href="http://healthmattershow.com/wp-content/uploads/2010/05/Criona-Wilson-and-Sophia.jpg"><img src="http://healthmattershow.com/wp-content/uploads/2010/05/Criona-Wilson-and-Sophia-300x219.jpg" alt="" title="Criona Wilson and Sophia" width="250" class="alignleft size-medium wp-image-16339" /></a><strong>CFS/ME </strong>is a generally accepted term coined for the similar and combination illnesses of <strong>CFS</strong> (or <strong>Chronic Fatigue Syndrome</strong>) and <strong>ME</strong> (<strong>Myalgic Encephalomyelitis</strong>); the term <b><i>walking wounded</i></b> pretty much speaks for itself because it&#8217;s an all too accurate description of the life lived by the people who are so severely affected by CFS/ME. </p>
<p>And such is the language used by Criona Wilson, mother and <b>caregiver</b> of the now deceased <strong>Sophia Mirza</strong>, the first recorded case of someone dying from ME (CFS/ME) in the UK.</p>
<p><center><b><font size="3"><a href="http://www.dailymail.co.uk/home/you/article-1277519/Criona-Wilson-recalls-daughters-losing-battle-ME-She-went-hellhole.html#ixzz0oHXWN86N">A mother&#8217;s candid account of her daughter&#8217;s battle with ME: &#8220;She went into a hellhole.&#8221; </a></font size></b></center><br />
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At age 32&#8230; Sophia Mirza lost her life to ME – the first time the condition was recorded as an official cause of death in the UK. Read the story where Criona Wilson talks to a reporter about Sophia’s excruciating final years and the torment they suffered at the hands of a health profession that didn’t know how to treat her illness.</p>
<p>As a former midwife and qualified nurse, Criona Wilson says that if there’s one thing she knows about, it’s illness. ‘There’s a rhythm to sickness, to getting better,’ she says. When her youngest daughter mysteriously became unwell, she had a feel for the diagnosis. ‘Although I’d never nursed anyone with the condition before, looking at Sophia I said, “I think you have ME.”’</p>
<p>Eight years later, in 2006, the inquest of Sophia Mirza dramatically supported her mother’s instinct. The coroner ruled that the 32-year-old had died of complications due to myalgic encephalomyelitis, a landmark verdict in the UK. A neuropathologist told the court that Sophia’s spinal cord was inflamed, with three quarters of her sensory cells displaying significant abnormalities. Yet, as Sophia’s treatment by the medical establishment had underlined – she was forcibly sectioned (committed) for a spell in 2003 – many doctors handle ME (also known as postviral or chronic fatigue syndrome), as if it were a mental condition.</p>
<p><center><b>‘I listened to her because she was a young person<br />
who desperately wanted to get better.&#8217;</b></center></p>
<p>I can relate to that remark. Can&#8217;t you? All people who are severely ill want to be listened to, want someone to take them seriously. And&#8230; they want to get well and leave the illness behind them.</p>
<p>Criona describes her daughter as (the) <strong>walking wounded </strong>at that stage: able to potter (putter?) between bedroom and bathroom, able to lie on the living-room sofa. With support from her GP, Sophia applied for disability benefit and was given a council flat in a high-rise block nearby. It was glaringly bright and noisy. Ten weeks after moving in, Sophia was bedridden and Criona moved in to care for her. ‘I had never known anyone with such hypersensitivity to everything. She went through all the stages people do – hoping to get better, helplessness, anger.’</p>
<p>She recalls the first signs of the drawn-out illness that changed everything in 1998&#8230; .</p>
<blockquote><p>Sophia caught malaria while traveling in Africa; then, while living in London, ‘she got flu and I went to see her. She suggested we went to a café down the road and she was walking like a 120-year-old woman. But she got better. It was flu at that stage. The following year she got it again. I went to collect her and halfway back she said she couldn’t continue, the car was making her desperately ill. We were stuck in a lay-by for a couple of hours, and then I got her home to Brighton and she lay on the couch and that was that: she never did anything again.’</i></p></blockquote>
<p><a href="http://www.dailymail.co.uk/home/you/article-1277519/Criona-Wilson-recalls-daughters-losing-battle-ME-She-went-hellhole.html"><strong>Read more about this fascinating mother and her deceased daughter, Sophia Wilson, the first case of someone dying from ME at the DailyMail.</strong></a></p>
<p>Today I read this account of Criona Wilson and Sophia Myrza and know that a part of me was there. I suffered badly, too, for a long time with Chronic Fatigue Syndrome (and Fibromyalgia). But I also know that I did not go through what Sophia endured. Sick and hurting beyond human tolerance, she was virtually abandoned and left to die by the UK health system. Her mother was her only supporter and caregiver.</p>
<blockquote><p><b><font color="2f8c8c">I encourage you, as a friend, caregiver, doctor or health official, if you can reach out to a CFS/ME sufferer and tell him or her that you&#8217;re there to support them, it will make a world of difference. If you can reach out to help, do it. If you can make a difference and improve the health system, do it. Let&#8217;s stick together, speak out and demand better health care through <strong>1)</strong> recognition of the illnesses, <strong>2)</strong> more compassionate care, <strong>3)</strong> better answers for getting over the illness and <strong>4)</strong> for the ways and means for people to be able to resume healthy lives. The time has come to act.</font color></b></p></blockquote>
<p>I truly think that the health services of the UK should really be ashamed of themselves. Putting such exclusive emphasis on the &#8220;mental&#8221; components of the CFS/ME only serves to pidgeon-hole it and allow &#8220;you&#8221; to shirk your responsibility of providing care, through the very real medical side of this complicated and tragic illness, for the people who suffer with it. Where is your common decency to the <em>walking wounded</em>? If this illness afflicted you or someone you love, you&#8217;d be singing a different song entirely.</p>
<p><center><b>Once we provide for basic human needs and understanding,<br />
we, as a people of the world,<br />
can move forward with hope and progress.</b></center></p>
<p>Thanks for listening. Please leave your comments below, Cinda Crawford<br />
Host of the Health Matters Show and creator of <a href="http://www.getwellhealth.com/sacred-cellular-healing"><strong>Sacred Cellular Healing</strong></a></p>
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		<title>New ME/CFS Book: For Young People and More</title>
		<link>http://healthmattershow.com/new-mecfs-book-for-young-people-and-more/</link>
		<comments>http://healthmattershow.com/new-mecfs-book-for-young-people-and-more/#comments</comments>
		<pubDate>Thu, 01 Apr 2010 17:06:19 +0000</pubDate>
		<dc:creator>Cinda Crawford</dc:creator>
				<category><![CDATA[Caregiver Info]]></category>
		<category><![CDATA[Chronic Fatigue Syndrome]]></category>
		<category><![CDATA[Living and Surviving]]></category>
		<category><![CDATA[What do you do if you're really sick?]]></category>
		<category><![CDATA[Young People]]></category>
		<category><![CDATA[caregiver]]></category>
		<category><![CDATA[cfs]]></category>
		<category><![CDATA[CFS book]]></category>
		<category><![CDATA[cfsme]]></category>
		<category><![CDATA[Emily Collingridge]]></category>
		<category><![CDATA[me]]></category>
		<category><![CDATA[ME book]]></category>
		<category><![CDATA[me/cfs]]></category>

		<guid isPermaLink="false">http://healthmattershow.com/?p=15137</guid>
		<description><![CDATA[Learn more about the new book, "Severe ME/CFS: A Guide to Living" (for Chronic Fatigue Syndrome too)at Health Matters Show with Cinda Crawford.]]></description>
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<p><a href="http://healthmattershow.com/wp-content/uploads/2010/03/SevereCFSME-newbook.jpg"><img src="http://healthmattershow.com/wp-content/uploads/2010/03/SevereCFSME-newbook.jpg" alt="" title="SevereCFSME-newbook" width="150" height="212" class="alignleft size-full wp-image-15143" /></a>Emily Collingridge has written a new <strong>CFS ME </strong>(<strong>CFSME</strong>) or <b>ME/CFS</b> <strong>book</strong>, entitled <b><i>Severe ME/CFS: A Guide to Living</i></b>, which is acclaimed to be the first definitive reference book written specifically to help those people suffering with ME (Myalgic Encephalomyelitis). If is written about and to those individuals who are predominantly bedridden and in need of considerable care. If you are severely ill or your <strong>caregiver</strong> needs additional information, I would recommend you get a copy of this book.</p>
<p>Writing this work surely had to be a miraculous accomplishment for Emily Collingridge because she was so drastically ill for so long. She fell sick when she was 6 years old and that was 22 years ago!</p>
<p>(Learn more about Emily and her new book&#8230;<br />
<span id="more-15137"></span><br />
<a href="http://www.ayme.org.uk/article.php?sid=21&#038;id=298"><strong>here</strong></a>, at the Association of <strong>Young People </strong>with ME.</p>
<p><a href="http://healthmattershow.com/wp-content/uploads/2010/03/EmilyCollingridge-age6.jpg"><img src="http://healthmattershow.com/wp-content/uploads/2010/03/EmilyCollingridge-age6-150x150.jpg" alt="" title="EmilyCollingridge-age6" width="140" class="alignleft size-thumbnail wp-image-15149" /></a></p>
<blockquote><p>Emily Collingridge, from London, learned the hard way. She became ill 22 years ago, at the age<br />
of 6. She has now had severe ME/CFS for 12 years. At her worst she was blind, mute, doubly incontinent, tube fed and unable to move at all. Rare complications brought her close to death. Desperate to make severe ME/CFS a less traumatic experience for others, Emily has spent the last two years researching and writing <em><strong>Severe ME/CFS: A Guide to Living</strong></em>.</p></blockquote>
<p>By all accounts, Emily Collingridge is an extraordinary young woman. I encourage you to order the book directly from the website. Here are comments I received via email as to them being able to ship the book overseas.</p>
<blockquote><p><i>The guide has been written for UK patients, however it does include valuable information for all patients. We will however have to include postage (airmail)  which will be added to the cost (£5.99)  for the booklet for all overseas orders.</i></p></blockquote>
<p>They provide an order form that you can print out, if you like.</p>
<p>You decide about the value of this book in your efforts to understand CFSME. I suspect it offers quite a bit of new information about the illness. Plus, it could be the perfect gift for the caregiver in your life. There never seem be enough good words of praise and gratitude to offer a true caregiver.</p>
<p>To all those suffering with CFSME or MECFS (whatever term you choose),<br />
To your health, help, information, happiness and comfort,<br />
I&#8217;m Cinda Crawford, your host of the Health Matters Show</p>
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